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PPI Research Meetings

1st July 2019

Why

Have you discussed and communicated the reasons for working with lay people so that everyone’s expectations are clear?
Yes
Agreed at meeting that a working group representing service users and research staff would develop project together to ensure effective structure of meetings was developed, that would deliver on the objectives of both groups.
Have you defined the experience and/or skills you are looking for in the lay people you will work with?
Yes
Have you been clear about the commitments and expectations with everyone?
Yes
Clearly stated way of working, time commitment and anticipated schedule of work,and payment in email to group members and asked them for feedback on structure and individual preferences.
Have you agreed what you think that the impact of involving lay people will be and has this been discussed and communicated to everyone?
Yes

Co-Define

Have you reviewed research and good practice literature to help you consider what the lay perspective might be for this work?
no
Have you reviewed research and good practice literature to help you consider what the lay perspective might be for this work?
Have you discussed how you might approach defining the needs or priorities with individual patients/carers or the public?
Yes
Have you discussed how you might approach defining the needs or priorities with individual patients/carers or the public?
Have you established a group, event and/or process for discussion that includes lay people?
Have you established a group, event and/or process for discussion that includes lay people?
Have you considered whether you need to include the views of seldom heard groups?
Yes
Have you considered whether you need to include the views of seldom heard groups?

Co-Design

Have you considered using evidence-based approaches to Co-design?
Have you involved lay people in defining outcomes and how to measure them, including those that could be recorded by patients, public or carers?
Have you involved lay people in deciding if decision aids would be useful?
Have you involved people in creating any public or patient facing information or communications?

Co-Deliver

Education - Are lay people involved in teaching?
No
Education - Are lay people involved in examining?
No
Research - Are lay people involved as researchers, for example, helping to recruit participants?
No
Service Design & Improvement - How are you involving lay people?
Service Design & Improvement - Are there patient champions to work alongside clinical champions?

Co-Decide

Governance - Are lay people involved in governance structures and processes and or advisory structures and processes?
Yes
Governance - Have you considered the timing and locations of meetings to ensure that they are accessible to all?
No
Governance - Have you defined expected behaviours for group eg appropriate language – plain English, no acronyms.
Yes
Governance - Have you considered having a lay chair or co-chair?
Yes
Governance - Have you provided training and support so that lay people can be effectively involved?
Yes
Assurance processes - Are lay people involved in staff appointments?
No
Assurance processes - Are lay people involved in staff appraisal?
No

Co-Distribute

Are lay people involved in writing-up your work?
Yes
Is your report or output written in plain English?
Yes
Have you written a lay summary of your work?
No
If you are presenting your work, for example at a conference, will you have a lay co-presenter?
Yes
If you are running a conference to disseminate your work will lay people be invited?

Co-Evaluate

Have you involved lay people in deciding what to evaluate?
Yes
Have you involved lay people in designing the evaluation?
Yes
Have you involved lay people in the delivery of the evaluation?
No
Have you involved lay people in the decision making structures and/or processes of the evaluation?
Yes
Have you involved lay people in distributing the findings of the evaluation?
No

Impact

What is the possible impact on the people?
What is the possible impact on the community?
What is the possible impact on the work processes?
What is the possible impact on the work outcomes or the product produced?

Comments

Claire.Murray@oxfordhealth.nhs.uk

1st July 2019

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